Acknowledgement of Country 

Design Research with Dementia in Mind Ali de Kruiff and Bridgette Engeler DR2022 Thursday 17 March 

Dementia affects millions of people 472,000 Australians are living with dementia 1.6 million people involved in care 70% in the community People want to stay in their home for longer (Dementia Australia, n.d.) 

Our research project Partnered with Dementia Australia (Victoria) Duration: 18 months 28 participants (13 men, 15 women) 24 support people 12 researchers (Tandori, Beh & Pedell, 2019) 

Why can't we take the same approach as with other research participants? Doing research with people living with dementia is complicated No ‘one size fits all’ Even the brief had to be adjusted (Prince et al., 2015; Sachdev et al., 2014) 

Ethics, ethics, ethics (National Statement on Ethical Conduct in Human Research 2007, 2018) 

Challenge myths and assumptions about people living with dementia 

Key findings 

Lessons learned 

Tips for future research 

Reference List Welcome to Dementia Australia. Home | Dementia Australia. (n.d.). Retrieved March 14, 2022, from https://www.dementia.org.au/ Tandori, E., Beh, J., & Pedell, S. (2019, December). It's on the Cards: Designing Technology Instructions for People Living with Dementia. In Proceedings of the 31st Australian Conference on Human-Computer-Interaction (pp. 402-406). 

Reference List National Statement on Ethical Conduct in Human Research 2007 (Updated 2018). The National Health and Medical Research Council, the Australian Research Council and Universities Australia. Commonwealth of Australia, Canberra. 

Reference List Prince, M., Wimo, A., Guerchet, M., Gemma-Claire, A., Wu, Y.-T., & Prina, M., 2015. World Alzheimer Report 2015: The Global Impact of Dementia - An analysis of prevalence, incidence, cost and trends. Alzheimer’s Disease International, 84. https://doi.org/10.1111/j.0963-7214.2004.0029 3 Sachdev, P. S., Blacker, D., Blazer, D. G., Ganguli, M, Jeste, D. V., Paulsen, J. S., Petersen, R. C., 2014. Classifying neurocognitive disorders: the DSM-5 approach. Neurology, Nature Reviews, vol.10, pp.634-642.