My humble appeal: Dananjaya

New developments in Stem Cell technology have given great hope to this family, whose only son is struck by Duchenne Muscular Dystrophy. This is my personal appeal to my friends to help them.

Transcript

1. Please type “CTRL + L” now to start the Slideshow. This slideshow This slideshow will take will take just 5 just 5 minutes minutes of of your precious time your precious time for something very important for something very important… … Please spare your time. Please spare your time. Thank Thank you very much. you very much.
2. Subal & Family A Simple Family In Need New Stem Cell Technology offers great hope
4. Subal Prabhu •His Grace Subal Krishna Das is a very simple, hard- working and honest man. He is now aged 53.
5. Subal Prabhu •I have known him since @1990. He used to work as the gardener in the ISKCON (Hare Krishna) Temple of Lord Jagannath in Kuala Lumpur, Malaysia.
6. Subal Prabhu • He is a disciple of HH Jayapataka Swami Maharaj.
7. Subal Prabhu •He would always be at mangalarati at 4.30 am daily (till caring for his son prevented him from continuing this practice).
8. Subal Prabhu •Always smiling, humble & ever-ready to do any service, everyone who knows Subal prabhu loves him!
9. Subal Prabhu •Born in very humble circumstances, he only had a few years of primary school education.
10. His first marriage unfortunately failed, and later he re-married Letchumi Mataji, who also hails from a simple family.
11. •In 1995, they had a beautiful son whom they named Dananjaya. •Naturally, they showered all their love upon him.
17. •Dananjaya was an active, healthy child. But when he was 6, he began falling often and showed signs of weakness in his limbs.
18. •Sadly, a year later, he was diagnosed with a rare hereditary genetic disorder called Duchenne Muscular Dystrophy.
21. •This disorder causes all the muscles of the body to waste away, slowly weakening with time. •There is no known cure.
22. •Subal carried him to school & back daily until it became too strenuous for him to continue while managing his demanding work at the same time.
27. •There is no known cure for Duchenne Muscular Dystrophy but there are various therapies to strengthen the muscles and/or slow down the degeneration.
28. •His parents naturally try every type of treatment (ayurvedic etc.) & every type of food supplement etc. that they can afford.
29. •Many years ago, with Subal’s excellent cooking skills, they started a small Krishna-prasadam food stall in KL, Brickfields (Little India), near KL Sentral.
31. HARE KRISHNA HARE KRISHNA - - VEGETARIAN FOOD VEGETARIAN FOOD
32. • They start work by 5 am daily, preparing breakfast for their customers.
33. • Subal prabhu is well-known for lovingly & generously serving Krishna Prasadam with a smile to all who come to his stall, providing a vital service for the Vaishnava community in KL.
35. HARE KRISHNA HARE KRISHNA - - VEGETARIAN FOOD VEGETARIAN FOOD Shop No. 6 Jalan Chan Ah Tong Shop No. 6 Jalan Chan Ah Tong Between Lotus Hotel & Buddhist Maha Vihara Between Lotus Hotel & Buddhist Maha Vihara
36. •There are many other food shops nearby. •Getting steady workers is a big challenge – frequently they go away from the hard work to some easier job.
37. •Prices are very competitive and the profit margin, small.
38. •Subal does the best he can to meet all these challenges, depending on Lord Krishna’s mercy.
39. •They work very hard and live in very humble circumstances in a rented room just opposite their rented food stall.
40. •Caring for their child in all respects in between keeping up the business takes up all their time and energy.
41. •Subal & Letchumi have spent all the savings from their hard- earned money on their son’s treatment.
42. •As loving parents, I think they suffer more than their darling child. They can’t help but do their very best to give him the best quality of life possible.
43. •In recent years, with financial help of generous well-wishers, Dananjaya spent more than 2 years in India (Tamil Nadu, Kerala & Karnataka) undergoing different treatments.
44. •While he was in India, every 6 months or so, Subal would leave the business in Letchumi’s hands & to go to India and spend some time with him.
45. •Some of these treatments did give him a little more strength and helped reduce his suffering.
46. 2 years ago in India Now (2013)
47. •There is no known cure, so treatment and exercise must always continue.
48. •Recently, as the disease progresses with his age, Dananjaya has weakened so much that he can’t turn himself over while sleeping, can’t feed himself, nor bathe himself.
49. •This takes a great toll on his parents as they too are growing older. Even their sleep is broken: several times each night they have to help turn him over.
50. •They recently heard of some very good results from stem cell therapy, a new technology which offers some hope for persons with this condition.
51. •Please see www.neurogen.in for details and testimonies about the treatment.
52. •Some of these did give him a little more strength and helped reduce his suffering. •There is no known cure, so treatment and exercise must always continue. Contact information: NeuroGen Brain and Spine Institute Surana Sethia Hospital, Suman Nagar, Sion-Trombay Road, Chembur, Mumbai 400 071, Maharashtra, INDIA. Dr. Nandini Gokulchandran, M.D. Head- Medical Services and Clinical Research nandini@neurogen.in Dr. Guneet Chopra, MBBS, PGDGM Head-Research and Development guneetchopra@neurogen.in Contact numbers : +91 22 25283706, +91 22 65220066, +91 9920200400 Website: www.neurogen.in contact@neurogen.in
53. •Some recipients of this therapy have had up to 50% improvement in their condition.
54. •This gives great hope for the parents that this treatment may help improve the quality of all their lives.
55. • If he could just sit up and down by himself, or feed or bathe by himself, it would be such a great relief for them.
56. •It is naturally heart- rending for the parents to simply watch their darling son suffering thus right before their eyes. They have to keep trying their best for him.
57. •They are very sincere, honest, hard-working people, doing their very best to care for their son, who means everything to them.
58. •A friend helped commu- nicate with Neurogen Institute in Mumbai about the family’s limited finance & they generously gave a discount of about 26%.
59. Pg 1 of 3 Pg 1 of 3
60. Pg 1 of 3 Pg 1 of 3
61. Pg 2 of 3 Pg 2 of 3
62. Pg 2 of 3 Pg 2 of 3 Quotation in US Quotation in US$ = 7,500 without $ = 7,500 without discount (approx Rs 405,000/ discount (approx Rs 405,000/- -) ) After discount: Rs 300,000/ After discount: Rs 300,000/- -
63. Pg 3 of 3 Pg 3 of 3
64. •Subal has just taken their son for this stem cell therapy in Mumbai. They are in need of some financial support. •They departed on 19/4/13 and will return on 28/4/13.
66. •Thus the discounted cost of treatment is RM 18,000/. •Travel & other costs for father and son RM 4,000 •Misc. expenses RM 1,000_ •TOTAL: RM 23,000
67. •Subal himself raised & paid up RM 8,000 •Another friend pledged to raise RM 3,000 & also to give an interest- free loan of RM 5,000_ •Total raised: RM 16,000
68. • RM 23,000 _________- RM 16,000_ •Shortfall RM 7,000
69. •This is my humble appeal to your goodself: If it is within your means, please come forward with some financial support for this genuine cause to help this family.
70. • As I have known this warm and wonderful family for so many years, I am narrating their story as I know it because I believe it is a truly worthy cause. Please help them as much as you can.
71. • If you like to contribute towards the shortfall, please contact me via email or by SMS only to my below tel. nos. and I will get back to you. • Thank you very much. Hare Krishna!
72. Dina-Anukampana Das dinaanu@gmail.com www.gitajayanti.ning.com Tel: +60-12-577 2487 / +65 - 820 620 39 Yours sincerely,