Upgrade to Pro — share decks privately, control downloads, hide ads and more …

Cystic Fibrosis NZ

09c19beebf28d6c65c941b72a542e693?s=47 Lung Foundation NZ
November 11, 2015
43

Cystic Fibrosis NZ

09c19beebf28d6c65c941b72a542e693?s=128

Lung Foundation NZ

November 11, 2015
Tweet

Transcript

  1. CFNZ will optimise quality of life for people with cystic

    fibrosis and their families – striving for normal life expectancy. Registered Charity # CC10274
  2. New Zealand’s most common genetic disease 1 in 25 people

    carry the gene – if both parents are carriers there is a 1 in 4 chance of a CF baby in every pregnancy 430 people in NZ have CF CF is a life shortening disease
  3. Today - the Guthrie Heel Prick Test will diagnosis CF.

    The bad old days – relied on a the infants ‘failure to thrive’.
  4. Pills with EVERY meal (up to 15,000 pills a year).

    Half an hour of physiotherapy twice a day, morning and night. 40 minutes morning and night of nebulised medications. A person with CF must eat 3,500 calories every day (150% of the calories you and I need). Hospital specialists four times per year for numerous testing. A shortened lifespan
  5. CF Related Diabetes Depression and anxiety Fertility Issues: reproductive options

    Lung Transplant Gastro-oesophageal reflux Liver disease Complications of antibiotic use, e.g. kidney disease, hearing loss Sinus – polyps Osteoporosis
  6. High quality and accessible healthcare High functioning service organisation

  7. Financial assistance – welfare grants/ exercise equipment Equipment – Nebulisers

    are a must have and CFNZ fund these Education Counselling Lobbying Research Lifelong support
  8. More Kiwi’s becoming organ donors More Government Funding Awareness of

    this genetic condition – 1 in 25 carry the gene!