My data belongs to _____. (who?)

These slides were presented by Ernesto Ramirez and Rachel Kalmar at their 2015 SxSW Interactive session, 'My data belongs to _____. (who?)'.

Session details available here: http://bit.ly/sxswOpenData2015

Transcript

1. My data belongs to _____. (who?) Rachel Kalmar @grapealope @eramirez Ernesto Ramirez Sensored Quantified Self Labs March 15, 2015 bit.ly/sxswOpenData2015
2. Before we begin. This session is data. We will record and distribute it (audio + transcript). Access shouldn’t be restricted to those with a sxsw pass. These slides are available under the Creative Commons Attribution ShareAlike license. #opendata #sxsw @grapealope @eramirez
3. • What does it mean to ‘own’ data? • What rights do/should you have to your data? • What makes data sharing hard? • How can we enable more open data ecosystems? #opendata #sxsw @grapealope @eramirez
4. Many devices... #opendata #sxsw @grapealope @eramirez
5. not for devices. #opendata #sxsw @grapealope @eramirez
6. Challenges for connected devices 5 #opendata #sxsw @grapealope @eramirez
7. The new economy Source: Institute for the Future Infrastructure 1 #opendata #sxsw @grapealope @eramirez
8. Without the right infrastructure, currency becomes worthless flickr.com/photos/guuleed/253458330/ Infrastructure 1 #opendata #sxsw @grapealope @eramirez
9. We’re not even speaking the same language! diplomacy.edu Standards 2 #opendata #sxsw @grapealope @eramirez
10. @grapealope @eramirez What is a “step” anyway? Standards 2 #opendata #sxsw
11. We’re still prototyping. Standards 2 Is it too soon for standards? #opendata #sxsw @grapealope @eramirez
12. Battery life 3 Everything is a tradeoff with battery life. flickr.com/photos/twicepix/6997580445 #opendata #sxsw @grapealope @eramirez
13. It’s no longer about ownership; it’s about control flickr.com/photos/jacobwhittaker/2531399617/ Data control 4 #opendata #sxsw @grapealope @eramirez
14. @grapealope @eramirez Who controls the data? steampunklab.com Data control 4 #opendata #sxsw
15. Hugo Campos Why is this hard? tedxcambridge.com/thrive/hugo-campos/ Data control 4 #opendata #sxsw @grapealope @eramirez
16. How to balance being competitive with being open? Data sharing 5 #opendata #sxsw @grapealope @eramirez
17. Ernesto Ramirez Program Director, QS Labs @quantifiedself #opendata #sxsw @grapealope @eramirez
18. Three Freedoms of Personal Data Rights Madeline Ball Open Humans, Harvard PGP 1. Raw data access Access to digital files in standard, non-proprietary file formats. 2. Freedom to share  No restriction on how we share our data with others. 3. Unrestricted use  Freedom to modify and use our data for any purpose. #opendata #sxsw @grapealope @eramirez
19. medium.com/access-matters quantifiedself.com/qsaccess #opendata #sxsw @grapealope @eramirez
20. #opendata #sxsw @grapealope @eramirez
21. quantifiedself.com/access-app #opendata #sxsw @grapealope @eramirez
22. ResearchKit “We created our apps, our tools, our systems to reflect our opinion, that participants should be at the center of research. And then we’re giving it away. That’s our position, and it’s better by default.” John Wilbanks Sage Bionetworks #opendata #sxsw @grapealope @eramirez
23. @goinvo HealthAxioms
24. • What does it mean to ‘own’ data? • What rights do/should you have to your data? • What makes data sharing hard? • How can we enable more open data ecosystems? #opendata #sxsw @grapealope @eramirez