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Building a collaborative data sharing portal for Alzheimer's disease research

Kara Woo
June 24, 2019

Building a collaborative data sharing portal for Alzheimer's disease research

The AMP-AD Knowledge Portal provides data, analysis results, and tools to support research into new therapies for Alzheimer's Disease. Over 260 researchers have contributed to the data available in the portal, which ranges in type from genomic to behavioral, and includes over 5800 individuals. This talk will present the portal's development as a case study in collaborative research and development among scientists, data curators, engineers, designers, governance experts, users, and many others. We will present on the portal's evolution, and discuss how our approach to collaboration and data curation has evolved to support the Alzheimer's disease research community.

Kara Woo

June 24, 2019

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  1. Kara H. Woo, Mette A. Peters, Anna K. Greenwood, Benjamin

    A. Logsdon, Yooree Chae, Meagan Bemer, Solveig K. Sieberts, Kenneth Daily, Zoë Leanza, Christine Suver, Megan Doerr, Kelsey Montgomery, Phil Snyder, Sumit Mukherjee, Jake Gockley, William Poehlman, Tess Thyer, Ljubomir Bradic, Stockard Simon, Duminda Aluthgamage, Woody MacDuffie, Thanneer Perumal, Meredith Slota, Michael Barakat, Michael Lee, Jay Hodgson, John Hill, Bruce Hoff, Michael Kellen, Larsson Omberg, Lara M. Mangravite, and the AMP-AD, M2OVE-AD, MODEL-AD, and Resilience-AD consortia
  2. AMP-AD Knowledge Portal • Multi omics data, behavioral, imaging, and

    more • Human brain samples, mouse and Drosophila models, cell lines • 5800+ individuals, 50+ studies • We integrate data from different groups
  3. Building trust takes many types of work, and is crucial

    to effective collaboration. Collaboration isn’t only between scientists, or grantees.