Paul Merrel, Rebecca Hendry, Sean Rom & Peta Marks - The one-two punch: Context and co-design - Transcript

The Coronavirus disease pandemic has made it easier to research with many people in multiple locations for more inclusive design.

And yet, we've been missing context and the opportunities for designing with people; to truly make lives better.

This presentation is a strong, emotional call to continue to put people at the heart of what we do when technology and circumstance may tempt us to do otherwise.

We'll share learnings from researching in health contexts during the recent COVID-19 pandemic and co-designing with GPs and people with lived experience of eating disorders.

Sean Rom and Peta Marks from the InsideOut Institute join Paul & Bek on this presentation.

Transcript

1. N e ha hi i a edi ed a c i f a li e e e a d he ef e ma c ai e . Thi a c i i he j i e f Ca i LIVE a d he a h i ed a e ible f a me a d ma be c ied ed b a he a i h a h i a i . www captionslive com au | captionslive outlook com | UX A a a D R a c Da 2 T da , 18 Ma c 2021 Ca i ned b : Hila Cadd
2. N e ha hi i a edi ed a c i f a li e e e a d he ef e ma c ai e . Thi a c i i he j i e f Ca i LIVE a d he a h i ed a e ible f a me a d ma be c ied ed b a he a i h a h i a i . Page 83 PAUL MERREL: I'm ell, hank , S e e, l king f a d i . STEVE BATY: W nde f l. Hang n, I h gh he e a ne m e b he e he i . Hell Sean. I ill hand e , hank e m ch f hel ing cl e da . SEAN ROM: G ea . S I'll a ff. Hi e e ne. A fe hing bef e e ge a ed. I j an ed ha e me ick eminde f he e i n. Plea e d n' ake c een g ab , ca e e an image ha e an f hi e en a i n. The ea n being ha e a e ha ing eal ie i h li ed e e ience f ea ing di de and GP lea e e ec he i ac . We al an ed a if he e en a i n b ing an i e f , lea e c n ac e le h can incl ding all he ele an gani a i n . O e ne milli n e le in A alia a e li ing i h an ea ing di de . Thi i e ima ed a ab f fi e e cen f he A alian la i n. Pe le i h ea ing di de ha e he highe m ali a e , i h an e ia ne a ha e he highe f an chia ic di de . Thi i c mm nl de e i n and/ an ie b in gene al he ' e j n al a aigh f a d f GP iden if and ea . F na el he e a e e idence ba ed ea men ha a e effec i e and e le can ec e f m an ea ing di de a all age f illne . H e e , c en e ima e gge ha le han ne in f , a nd 23.2 e cen f e le acce ea men and nl a mall i n f h e ecei e e idence ba ed ca e. A he ame ime, e le i h ea ing di de acce heal h e ice a a m ch highe a e i h a nd... 73 e cen f he ime he indi id al i eeking ea men f eigh l . Wha all hi in and ha i clea f m he k a he in ide
3. N e ha hi i a edi ed a c i f a li e e e a d he ef e ma c ai e . Thi a c i i he j i e f Ca i LIVE a d he a h i ed a e ible f a me a d ma be c ied ed b a he a i h a h i a i . Page 84 In i e and he gani a i n i ha he maj i f e le i h an ea ing di de a e n being iden ified and being ided i h he be ea men . Wha ' m e, al h gh e le can ec e , ea l in e en i n i i al ed cing he c e and e e i f illne and alle ia ing nnece a ffe ing. I ' n nc mm n f e le g f 30 ea i h diagn i ea men . E en hen eeing ha I GP eg la l f c mm n ec ing i e , like eigh c nce n de e i n. Pe le in ima ca e a e in a g ea i i n he c eening, a e men and ea l in e en i n, ing he be a ailable e idence. Hi, I'm Sean R m and I'm a digi al... I al an in I hink he e migh be an i e i h ha ing he lide a he m men . I'm n e, a e e - PAUL MERREL: Ye , I hink e' e ka . We'll j ge a h mb if e le can ee h e. SEAN ROM: I hink , b he a e n m ing al ng d ing he e en a i n. STEVE BATY: Y ' e ill j h ing he i le lide, Pa l. PAUL MERREL: Oka . I'm eeing me hing diffe en n m c een. I'm ab ha . SEAN ROM: All g d. PETA MARKS: G l e a bi ha e a echnical challenge a a digi al c nfe ence.
4. N e ha hi i a edi ed a c i f a li e e e a d he ef e ma c ai e . Thi a c i i he j i e f Ca i LIVE a d he a h i ed a e ible f a me a d ma be c ied ed b a he a i h a h i a i . Page 85 SEAN ROM: Ye . PAUL MERREL: Sean, I migh ee if can ha e c een if ha ' all igh , lea e. SEAN ROM: S e, I can gi e i a g . STEVE BATY: See h g . SEAN ROM: And I migh j a hi . S , ne ec. The e e g . PETA MARKS: Pe fec . Thank Sean. SEAN ROM: A I aid, I'm Sean R m, I'm he digi al jec c dina a in ide In i e and I'll hand if e Pe a n . PETA MARKS: IOI i A alia' na i nal in i e f clinical e cellence in ea ing di de , mi i n i an f m he ea men land ca e f e le i h ea ing di de and e an d ha h gh e ea ch, k lace de el men and ing clinical e cellence and ac ice change. The clinical digi al l jec a ed in A il la ea , j a COVID a kicking ff. I a f nded b he Fede al G e nmen a ne f a n mbe f jec i n f c ing n an la ing e idence in ac ice. In heal h, e kn ha i ake an a e age f 17 ea f a e ea ch inn a i n make i in e e da ac ice and clea l hi i blema ic. Tha ' h he g e nmen and IOI a e de e mined d me hing im e hi .
5. N e ha hi i a edi ed a c i f a li e e e a d he ef e ma c ai e . Thi a c i i he j i e f Ca i LIVE a d he a h i ed a e ible f a me a d ma be c ied ed b a he a i h a h i a i . Page 86 O king h he i i ha if e can im e ea l de ec i n and in e en i n a he in f ima ca e, a ic la l i h GP , and if e can in hem in he di ec i n f e idence b ing hei deci i n-making, hen e h ld be able limi he g e i n f illne and im e e le' heal h and ellbeing. The bjec i e f jec i c ea e a digi al l f GP , e a ed la ea b engaging Meld and king i h beck and call ake a de ign e ea ch a ach l ing hi e c m le challenge. The e a e l f i e ha eall need f c n ide ed in hi ace. The e' em i e ch a lack f a ailable eciali e ice and l f c m le i ie a nd Medica e eba e. The e a e ac ice i e ch a h l ng GP ha e f c n l a i n and if a e n e en a blem X and ' e nl g 10 min e ee hem, hen he e i n' ime f he GP ai e a en ial blem Y. The e a e kf ce i e ch a ed ca i n and aining a nd ea ing di de f heal h fe i nal . And he fac ha n all GP a e in e e ed in eciali ing in men al heal h ea ing di de . The e' e ignifican igma and i i ing a nd an a cia e ea ing di de , and ha migh mean a a me ne h ' g m m f an ea ing di de can be mi ed. And, f c e, he e a e indi id al fac ha a e a cia ed i h he e e ience f ha ing an ea ing di de . S ha e n, illne h e e e i ac all i , a ell a ignifican fea ab engaging in ea men and ha can mean ha e le c ld li h gh he c ack . We kn ha e le h ha e ea ing di de i h hei l ed ne can ggle find e ice and hel and e kn e le d n' ge he ea men he need f en n il he e e i f hei illne i eall im ac ing hei life. We kn e le ge di ec ed ea men hich i n' . GP a e e ec n e e e hing ab e e hing and ha i n' ible. We kn ha a ien alk hei GP ab men al heal h m e
6. N e ha hi i a edi ed a c i f a li e e e a d he ef e ma c ai e . Thi a c i i he j i e f Ca i LIVE a d he a h i ed a e ible f a me a d ma be c ied ed b a he a i h a h i a i . Page 87 han an he heal h i e. Tha ' h i ' im an hel hem a ach in a m e inf med, and e idence ba ed a . We elec ed Meld nde ake hi k beca e he a ach eall fi i h ha e kn i im an ab king i h e le h ha e ea ing di de . C de ign i a ela i el , n c m le el ne b ela i el ne e m b i ' an a ach ha ' n n m i h h e k i h e le n a ne- n- ne le el. We can' make e le ec e . Q ali f e ea ch f c ing n e le' ie and e e ience i eall c mm n in heal h and in men al heal h e ea ch. We an ed b ing ha a ach in he ce anal i ha e f digi al l jec . I'm g ing hand e he Meld eam n . REBECCA HENDRY: Thank Pe a. S e' e g ing ge in he h n , me f he a e a ached hi challenge hich Pe a and Sean ha e bea if ll laid f . S he i le f hi alk ela e c n e and c de ign, and e' e alking al ab me f he challenge ha e face i h COVID. S ha ha ened a he beginning a e, a Pe a aid, i kicked ff in A il and e had d he b lk f e ea ch em el , and hi mean a l f g d hing a ell a a fe challenge hich e'll ge in in a ec b n he i i e ide i eall ga e a can ee f m he ma i ha e had hi g ea b ead h f ge g a h . We e e able eak e le in n j me li an hich i la gel ha e e e limi ed if e did all e i n face face b egi nal and al a ell. Y can ee e had a g d ead ac he S a e he e. We ke GP in diffe en e f ac ice , e ke GP i h diffe en le el f kn ledge f ea ing di de e ha en i ea men i e , e e e able eak e le in m e em e a ea he e i ' m e diffic l ge ca e. And f c e n
7. N e ha hi i a edi ed a c i f a li e e e a d he ef e ma c ai e . Thi a c i i he j i e f Ca i LIVE a d he a h i ed a e ible f a me a d ma be c ied ed b a he a i h a h i a i . Page 88 ha ing a el mean e c ld each kn diffe en a ea can ee n he ma m e ea il . COVID mean a a id ad i n f ide echn l g hich al hel ed he ca e. J m e n, Sean. S hi i ne f a ici an h gene l all ed ha e a mall a f he da . S a fea e f he a ach i he in en i n h mani e he k ha e' e d ing and I kn ha nd b i b lang age i a big a f hi and e called he e le ha e ked i h a ici an he e e ible e le, al e na i e c ld be e ea ch e nden e en e bjec . And, f c e, in he c l e f heal h ca e, a l f he acce ed c n en i n a e e d like a ien b he e e ible and he c edi f he h le eam e al a ied alk ab a ici an a e le i h li ed e e ience f ea ing di de e le iding ca e f e le i h ea ing di de . S I g e hinking a bi m e ca ef ll ab he lang age in hi a can eall hel all dec n c me f he hie a chie hich e i in hi c n e . The e hie a chie can lea e e le feeling di em e ed and c ea e ainf l d namic be een he e g . A man f ill e e ience hen e eimb e e ea ch a ici an , e f en ba e hi n a le el f kill and h in demand he c h a e, and he deci i n eimb e a ici an a he ame a e, b h GP and e le i h li ed e e ience. Thi i a bea if l image lied b he a ici an j a . S e e e able e me e hn g a h a ici an and me f hem did elf- ec ding a ell. Thi i an a k f m he a ici an called M A m hich de c ibe he e e ience f he illne , can ee he da k ide and he ligh e ide in ha . I ga e a i id j m ing ff in he deci i n and in hi a ic la ca e, he ha ed i h ha ha da k a i he illne and all he e le n he lef -hand ide a e he
8. N e ha hi i a edi ed a c i f a li e e e a d he ef e ma c ai e . Thi a c i i he j i e f Ca i LIVE a d he a h i ed a e ible f a me a d ma be c ied ed b a he a i h a h i a i . Page 89 e le ing he . He he a i , die i ian, he ca e manage , famil , all he e le in h i al he an ed h ha i ' a eam eff . I eall all ed e le eflec bef e he came he e i n a ell, and al gi e a dee e le el f nde anding and in igh in hei e e ience, he he i a GP , familie f e le he e le hem el e . S me hing ha e alk ab in e ice de ign i f n age and back age and be een i hi line f i ibili . S e e e f c ed n he e la gel e ec i e , GP and e le i h li ed e e ience and hei familie . In he c n e f hi a ach, e e en' able ee hi line f i ibili fi hand b i ing in and b e ing a li e c n l a i n in he d c ' m , a ell a being in he mid f a andemic, he e a e i e a i ac and c n en and he i e f e ea che b e ing he e in e ac i n ha ing nin ended c n e ence f he e hing ha e' e ing im e, ec i n and ca e. We'll m e n, Sean. Thank . Gi en hi a ec f e ea ch a mi ing, e ill fel e needed a a af e he e in e ie ia Z m nde and ha line f i ibili he ne be hing f a eak i h GP in hei c n l ing m e ma ked and e gani ed, can ee Sean in hi ic e i h ne f he GP , e gani ed ech eak GP . We ga e hem cena i f h he can h ll la he f c n e a i n he ld be ha ing i h e le h ld be e en ing, and ha g a l cl e be e nde anding ha h e in e ac i n e e like. The e e able dem n a e ha he ld d in h e c n e a i n , h he c n e a i n migh g , ha ' he f inf ma i n he ld h he e n, h hem n hei c een, e he ac ice f a e, in me hing f hem, gi e hem me hing ake h me and c m le e. I ga e a l f de ail and n ance ha a i e diffic l
9. N e ha hi i a edi ed a c i f a li e e e a d he ef e ma c ai e . Thi a c i i he j i e f Ca i LIVE a d he a h i ed a e ible f a me a d ma be c ied ed b a he a i h a h i a i . Page 90 ge j f m a king GP ha he d . S ha a a eall ef l in f . F he de ign be ad ed in a ainable a , he need in eg a e in GP' e i ing k fl . S a ne GP aid in he e ea ch, GP a e a di e e a hei a ien . S hi ne ic e i f a GP and he' ha ed a e i h he e a ell. And a f i a l king a imila cena i ha d c face, like di c i n ab an ie and de e i n. Thi i a e eciali ed a f men al heal h illne e . A Pe a men i ned ea lie e kn ha e le alk hei GP ab men al heal h m e han an he i e. Thi a a g ea ingb a d f be e nde and ha a c llab a i e dial g e c ld l k like f e le ge ing ca e f ea ing di de . And ha ' aking lace i ha H chin call c gni i n in he i land and hi efe h man c gni i n in i na al habi a . In hi ca e he l ha e ed and e ed a e e e en a i n f he c gni i n ha need ha en in ha c n e . The can make he in e ac i n ha en in a a ha if he l a ab en i ldn' cc . Thi de e i n and an ie l a a l ha e m ch all he GP e e familia i h. I became an anal g e hel imagine a c n e a i n ab de e i n and ange . Of en c gni i n ha en in he b ain and e e hing' ha ening in he indi id al b ha hi h i ha c gni i n i di ib ed in he c n e and am ng he e le aking a in i . Ha ing a c n e a i n ab i i a eall diffic l hing and b h he e n and he d c can find i eall ha d. The l e' e l king e l e hel facili a e ha in e ac i n ha he c ld m e ea il ha e ha c n e a i n. And l k, he men al heal h e i n hei ac a ha e efe a a T jan H e in a egic de ign. S he le n e lea ned he e he e ible, can e j ge
10. N e ha hi i a edi ed a c i f a li e e e a d he ef e ma c ai e . Thi a c i i he j i e f Ca i LIVE a d he a h i ed a e ible f a me a d ma be c ied ed b a he a i h a h i a i . Page 91 m e c n e f he hing ha e' e ing nde and, inf m, a Pe a and Sean de c ibed, i a eall c m le challenge. Al e' e back me f he ame e le a e in c n e and ha ' he image, GP king in he ame ac ice and l king a and alking ab me f he e af e e had c de ign e i n i h he a ici an c me i h h e idea . Then e al e em el and ha enabled again ge ha ge g a hical ead and ha di e i . We en back e le e'd al ead ken h hem h hei idea an fe ed in e , hich mean he c ld add an he la e inf m h he e hing can be ed. I a g ea beca e e eak he e e le a ec nd ime and he a I' e been hinking ab i and he e' me hing I an ed add. We f nd he e a al e in ca ef ll c a ing he diffe en a ici an in he ce . We had a bigge n mbe in he beginning and hen e d illed d n and ied main ain ha di e i a e did idea i n ge he and in e and e ing he e. Thi a e he idea f a ici a i e de ign, he e le h ha ed hei ie and came i h idea e e able a ici a e in making h e idea be e nce he had a e in f n f hem. We lea ned m ch h gh hi ce and e feel inc edibl l ck ha e d ne hi k. The bi e' e h n da i j he beginning and i ' a l ng g am f k. Pa l i n g ing lead a di c i n i h Pe a and Sean n he big hing e k a a . PAUL MERREL: Thi fi lea ning b ed f m Dan Hill' la b k and he idea f la e , and he idea ha me la e m e fa e han he and I hink heal h in a ic la i ne f h e l e m ing la e . And he e' g d ea n f ha beca e ha ace ba icall hel manage he i k and he c me ha c ld be i e di e if e m ed
11. N e ha hi i a edi ed a c i f a li e e e a d he ef e ma c ai e . Thi a c i i he j i e f Ca i LIVE a d he a h i ed a e ible f a me a d ma be c ied ed b a he a i h a h i a i . Page 92 ickl i hin ha em. S i ' l f a ea n. B a e hea d, 17 ea i ch a l ng ime m e in ha ace ac all ha e e le ge ing hel and e kn e need ha e e le ge ing hel ne . S i he e a a ha e can a k in a a ha ac all all ha e me la e in heal h m e fa e han he . S he idea f ing can be a g d a a mi iga e ha i k. B ha e me ne ell ha be e han me I'm g ing hand e Pe a ake h gh. PETA MARKS: I kn ha fig e f 17 ea ac all h ck e le f en, b he fac i ha an la i n ce can ake a l ng ime beca e bef e e d an hing in a ide ead a e eall need make e ha inn a i n , he he i ' medicine me hing ha ' digi al i effec i e and d e n ha m, like, d n ha m i ne f main ene . And hence he e ea ch ce hich i , ake a l ng ime j m h gh. S he he hing, ha hen mean ha a l f e ea ch i n' f nded all he a h gh. The 'll f nd he fi ime a , hen ' e g e ha i k and hen he ne a ill be f nded n , a he ca e ma be. T ea men need be a ed b he TGA. The e' a billi n h . F hinking c de ign inc ea e he likelih d ha an in e en i n ill be acce able he e le h i ' mean be hel ing and i de- i k in e m f hen e ge ha an la i n im lemen a i n ha e a e e likel be able deli e me hing ha ' g ing be acce able he c mm ni and he e le ha i ' mean e e. S I hink hi kind f c de ign ce ma n nece a il eed an la i n in and f i elf, beca e all de ign a nd ea men ill l ima el need be il ed in a m e e ea ch kind f a h gh an
12. N e ha hi i a edi ed a c i f a li e e e a d he ef e ma c ai e . Thi a c i i he j i e f Ca i LIVE a d he a h i ed a e ible f a me a d ma be c ied ed b a he a i h a h i a i . Page 93 academic in i i n b e e hing ha e d ed ce he i k a nd ha ill hel eed he ce . And a c de ign ce a nd hi e f jec eall inc ea e c nfidence in e m f ha d e m e h gh, ha d e m e ahead i h in e m f de el men . And l k, in a ld f ll f eall limi ed f nding e' e g a m ch be e chance f i i e c me if e engage e le igh a he a and igh h gh he jec . PAUL MERREL: I hink hi ne ne i eall im an a ell. Thi idea f c -c ea i n hea e i ' ha he e gani a i n can end m e e ce ac all alking ab le ing a ien hel , in e ma k he e, a he han ac all d ing he ha d k f c -c ea i n. S me ime he e' in en d i b he e' l f c l al ba ie i hin an gani a i n. S I hink ha ' im an f c n ide and ac all h e f c n d ing he ac al k m e han alking ab i , b I'll le Sean ake hi ne a ell. SEAN ROM: Thank Pa l. I hink e le migh a he ' e d ing i hink he ' e d ing i and ha can la gel be nin en i nal. I hink in a l f ca e e le an d i b migh n kn h d i e l migh be c l al ba ie . L king a jec in a ic la , d ing hi a f i ell, made i i e an e en i e in e men . D ing hi kind f ne- n- ne e ea ch i h e le i h li ed e e ience and GP , h e e i n e i e e a a i n and ime and in e men f m all in l ed, and e did l k a he m del he e d a 20 GP in a m ge he , 20 e le i h a li ed e e ience f an ea ing di de and a k hem e i n , b e an ed end ime n h e indi id al c n e a i n and ie ma he hing ha ld c me f hem and j eall end ime in he ecifici f h e indi id al
13. N e ha hi i a edi ed a c i f a li e e e a d he ef e ma c ai e . Thi a c i i he j i e f Ca i LIVE a d he a h i ed a e ible f a me a d ma be c ied ed b a he a i h a h i a i . Page 94 c n e a i n . PETA MARKS: The he hing i ha in men al heal h, he c n me e ice e he e n' i i n f n hing ab i h i eall famil held, and hi eall need e end ac all ha e f an jec e ice lanning in men al heal h. And i ' eall im an ha ha ce i n' keni ic. The e' b i l i e a fe challenge a nd ha . In hi jec e c -de igned a e aid, b he e en' a f lanning eam and m l f agma ic ea n , he ' e g he j b and he c ldn' ac all j in igh a ha fi age. T ge a nd ha ha e c n l i h and be led b e le a a man in in he c n in m a ible. In e m f he hea e a ec , ne he hing e c ld d in m ing f a d jec like ld be en ing b ge ing e le n aff in a jec eam and hen h gh ac i e e ea ch and c edi e ing and e en he e a hi in e ld ha e c n me , e le i h li ed e e ience f ea ing di de and GP he e e en ing lea ning i h da . PAUL MERREL: The la ne he e I hink, ha can e d diffe en l c n in e ha . PETA MARKS: Ma be I can j ell ickl ha e' e d ne ince he c m le i n f k. S Meld e ha f en ial e ba ed n ha c -c ea i n ce . We k he e and he ec mmenda i n in e nall , IOI, he clinical eam, e ea che , e e GP and ac ice manage all l ked a he e and ec mmenda i n . And ac ice manage in a ic la a ed l king a he ac ice k fl , n j he GP a ien e n k fl , and e a ed
14. N e ha hi i a edi ed a c i f a li e e e a d he ef e ma c ai e . Thi a c i i he j i e f Ca i LIVE a d he a h i ed a e ible f a me a d ma be c ied ed b a he a i h a h i a i . Page 95 hinking ab he e d e need c ea e change in ha b ade em GP and j a king el e ha e e mi ed an hing in ha b ade c n e . And e needed kn he he he e eall d . We kne he did be een he GP and he e n. We had k ha end n de el men ld need d and al ha i didn' need d . And ha b ade em hich incl de ac ice manage and n e and h he flag i e i hin ac ice f a e and f nding mechani m and all f ha kind f hing. S a he end f ha in e nal ce , I'm e ha e ha he Meld finding and e e e eall alida ed e came f ll ci cle nce e e l ed h e addi i nal elemen . In an e e i n, Pa l, i ' a l ng a e nd b if e had ime again I hink and e kne hen ha e kne n , e ha e ld ha e e anded he b ief incl de ha b ade em a bi m e and h e b ade k fl , c n ide ing h im an he eall a e f he a GP k. And ha babl ld ha e gi en he g e he de el men age ea lie . PAUL MERREL: Thank . Tha ' all f m . I j an a again a big hank Sean and Pe a and in ide in a ic la i h he ni k i h hem hi eek. We eall enj ed m ch f i , and hank e e ne f ning in da . STEVE BATY: Thank Pa l. PETA MARKS: I ld j like hank Meld. The ' e ama ing, ama ing e le k i h.