The Voices of Lived Experience : Design Research with Vulnerable People

Cf9808b306096a913709da756edeb665?s=47 UXAustralia
March 19, 2020

The Voices of Lived Experience : Design Research with Vulnerable People

Cf9808b306096a913709da756edeb665?s=128

UXAustralia

March 19, 2020
Tweet

Transcript

  1. Jax Wechsler jax@stickydesignstudio.com.au jaxwechsler.com The Voices of Lived Experience: Design

    Research with Vulnerable People D E S I G N S T U D I O @jacwex /Jacquelinewechsler
  2. None
  3. Lived experience The experience(s) of people on whom a social,

    health, mental health issue, or combination of issues, has had a direct impact’. A person unable to take care of themselves, or who is unable to protect themselves against harm or exploitation by reason of age, illness, trauma or disability, or for any other reason. Vulnerable person
  4. Jax Wechsler | Sticky Design Studio Designers have power

  5. Jax Wechsler | Sticky Design Studio Design is an act

    of power, or a potential act of power; that is, how design stages people’s agency, the structures that impact people’s agency, and how designed objects themselves seek to perform agential power… Whether aware of it or not, designers bring values and belief systems into the design practice based on their position in the world, and this influences the design in a particular way. Arguing that designers influence their design is not a controversial argument to make, but when design deliberately engages with power, social change, and the political condition, it seems increasingly important that designers critically reflect on their agency and position. https://www.diva-portal.org/smash/get/diva2:1350146/FULLTEXT01.pdf Juul Sondergaard, M L., Hansen, L K. (2017) Designing with Bias and Privilege?
  6. Jax Wechsler | Sticky Design Studio Human-centred Design People as

    experts Empathy +
  7. “deep understanding of the problems and realities of the people

    you are designing for”. IDEO’s Human-Centred Design Toolkit, Empathy brings
  8. Photo by Goh Rhy Yan on Unsplash

  9. Empathy is not enough. You can’t recognise what you don’t

    know. If you don’t know how it feels to sleep rough at night how can you recognise that feeling? If you are afraid of being assaulted at night then how can you actually recognise that fear? The reality is, you don’t….and you can’t. We can get close to how it feels but the more privileged you are the more likely it is that these realities are very distant to you to understand.
  10. Jax Wechsler | Sticky Design Studio We do not see

    things as they are, 
 we see things as we are. - Talmudic saying https://unsplash.com/photos/OsC8HauR0e0 https://bigthink.com/Mind-Matters/study-more-privilege-means-less-empathy
  11. Jax Wechsler | Sticky Design Studio

  12. Jax Wechsler | Sticky Design Studio

  13. Jax Wechsler | Sticky Design Studio Continued involvement

  14. None
  15. None
  16. How might we involve 
 diverse voices of lived experience

    THROUGHOUT our processes? We need to stop designing FOR people and start designing WITH people.
  17. Jax Wechsler | Sticky Design Studio Voices of lived experience

    Stakeholders with Empathy + Understanding +
  18. Jax Wechsler | Sticky Design Studio considerations for conducting research

    with vulnerable people 
 and including the voices of Lived Experience 8
  19. Jax Wechsler | Sticky Design Studio Take a systems view

    Life for vulnerable people is usually complex. A systems view facilitates understanding. #1
  20. Jax Wechsler | Sticky Design Studio • An (evolving) map

    of the system
 • Recruitment avenues
 • Research focus 
 • Sense-making
 • Intervention/Solutions #1 Take a systems view Life for vulnerable people is usually complex. A systems view facilitates understanding.
  21. Jax Wechsler | Sticky Design Studio https://thesystemsthinker.com/integrating-systems-thinking-and-design-thinking/ (1) Integrating systems

    thinking and design thinking By J. Pourdenhad, E. Wexler & D. Wilson (2) Systems thinking for social change By David Peter Stroh Resources: #1 Take a systems view Life for vulnerable people is usually complex. A systems view facilitates understanding.
  22. Jax Wechsler | Sticky Design Studio Mind your mental models

    Bias is unavoidable. Reflect. 
 Make the effort to know yours. #2
  23. • Power dynamics of the system.
 • Understand your privilege

    • Reflective Sense Making 
 Mind your mental models #2 Bias is unavoidable. Reflect. 
 Make the effort to know yours.
  24. Jax Wechsler | Sticky Design Studio Accessible + Appropriate Be

    appropriate. Enable + scaffold participation. #3
  25. Jax Wechsler | Sticky Design Studio • Locations.
 • Language.

    
 • Adaptation of methods.
 • Ability is diverse.
 • Culture.
 • Seek advice + support. 
 • Carers. Advocates. Interpreters. 
 Be appropriate. Enable + scaffold participation. Accessible + Appropriate #3
  26. Jax Wechsler | Sticky Design Studio Be adaptive Be like

    water…..
 Flow, Reflect, Adapt. #4
  27. Jax Wechsler | Sticky Design Studio • Creating trust +

    a sense of security is critical.
 • Fatten your project plan.
 • Be flexible.
 • Build in choice. 
 • Working with Advocates.
 • Payment. Be adaptive #4 Be like water…..
 Flow, Reflect, Adapt.
  28. Jax Wechsler | Sticky Design Studio Wellbeing Put wellbeing at

    the heart This includes your own #5
  29. Jax Wechsler | Sticky Design Studio • Researcher support. Create

    avenues. Debrief. Work in pairs.
 • In the beginning.
 • During. Check…and check again.
 • After.
 • Become trauma informed
 Put wellbeing at the heart. This includes your own. #5 Wellbeing
  30. Jax Wechsler | Sticky Design Studio Partners not informants Move

    from consult to collaborate… To co-create #6
  31. Jax Wechsler | Sticky Design Studio 
 • Build capacity

    for participation. This takes time. 
 • Social capital is key
 • Be Realistic + ethical. 
 • On-going engagement 
 #6 Partners not informants Move from consult to collaborate.
  32. Jax Wechsler | Sticky Design Studio Ethics protocol Formalise your

    ethics approach. #7
  33. Jax Wechsler | Sticky Design Studio • Commit to ethics


    • Inspiration 
 • Ethical questions for design work Auckland Co-lab- key questions to explore before and during project work 
 • Paper Giant’s Ethics Framework: https://medium.com/@absent/ ethics-in-design-research-d43c56fb8952
 • IDEO’s Little Book of Design Research Ethics : llbodre.ideo.com. #7 Ethics protocol Formalise your ethics approach.
  34. Jax Wechsler | Sticky Design Studio Amplify effectively Amplify the

    voices of lived experience. Facilitate empathy + understanding. #8
  35. Jax Wechsler | Sticky Design Studio • Your audiences. •

    Paint a systems view. 
 • Use Stories. 
 • Amplify real voices. 
 • Amplify for longevity.
 • Involve participants. Amplify the voices of lived experience. Facilitate empathy + understanding. #8 Amplify effectively
  36. Amplify effectively Ethics protocol Partners not informants Take a systems

    view Mind your mental models Accessible + Appropriate Be adaptive Wellbeing 8 Considerations for design research with vulnerable people
  37. Power is the ability to alter the states of others

    - Dacher Keltner
  38. Jax Wechsler | Sticky Design Studio Thanks jax@stickydesignstudio.com.au www.jaxwechsler.com www.stickydesignstudio.com.au

    https://www.linkedin.com/in/jacquelinewechsler/ Twitter: @jacwex D E S I G N S T U D I O