health, mental health issue, or combination of issues, has had a direct impact’. A person unable to take care of themselves, or who is unable to protect themselves against harm or exploitation by reason of age, illness, trauma or disability, or for any other reason. Vulnerable person
of power, or a potential act of power; that is, how design stages people’s agency, the structures that impact people’s agency, and how designed objects themselves seek to perform agential power… Whether aware of it or not, designers bring values and belief systems into the design practice based on their position in the world, and this influences the design in a particular way. Arguing that designers influence their design is not a controversial argument to make, but when design deliberately engages with power, social change, and the political condition, it seems increasingly important that designers critically reflect on their agency and position. https://www.diva-portal.org/smash/get/diva2:1350146/FULLTEXT01.pdf Juul Sondergaard, M L., Hansen, L K. (2017) Designing with Bias and Privilege?
know. If you don’t know how it feels to sleep rough at night how can you recognise that feeling? If you are afraid of being assaulted at night then how can you actually recognise that fear? The reality is, you don’t….and you can’t. We can get close to how it feels but the more privileged you are the more likely it is that these realities are very distant to you to understand.
things as they are, we see things as we are. - Talmudic saying https://unsplash.com/photos/OsC8HauR0e0 https://bigthink.com/Mind-Matters/study-more-privilege-means-less-empathy
of the system • Recruitment avenues • Research focus • Sense-making • Intervention/Solutions #1 Take a systems view Life for vulnerable people is usually complex. A systems view facilitates understanding.
thinking and design thinking By J. Pourdenhad, E. Wexler & D. Wilson (2) Systems thinking for social change By David Peter Stroh Resources: #1 Take a systems view Life for vulnerable people is usually complex. A systems view facilitates understanding.
a sense of security is critical. • Fatten your project plan. • Be flexible. • Build in choice. • Working with Advocates. • Payment. Be adaptive #4 Be like water….. Flow, Reflect, Adapt.
avenues. Debrief. Work in pairs. • In the beginning. • During. Check…and check again. • After. • Become trauma informed Put wellbeing at the heart. This includes your own. #5 Wellbeing
for participation. This takes time. • Social capital is key • Be Realistic + ethical. • On-going engagement #6 Partners not informants Move from consult to collaborate.
• Inspiration • Ethical questions for design work Auckland Co-lab- key questions to explore before and during project work • Paper Giant’s Ethics Framework: https://medium.com/@absent/ ethics-in-design-research-d43c56fb8952 • IDEO’s Little Book of Design Research Ethics : llbodre.ideo.com. #7 Ethics protocol Formalise your ethics approach.
Paint a systems view. • Use Stories. • Amplify real voices. • Amplify for longevity. • Involve participants. Amplify the voices of lived experience. Facilitate empathy + understanding. #8 Amplify effectively
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